Monday, June 1, 2009

My Spinal cord injury complications, spasms pain following a spinal cord injury below, wounds are healing, gunshot to back paralyzed t9 incomplete suffered from baclofen pump tubing catheter faults, sitting up causes extreme spasms and pain. I have insurance, I’m important, Please? I’m a twitter not a quitter.


Thank you Dr. Grubbs and Wallace for keeping me alive they will give referrals. If your site is racial or hateful please don’t follow mine, thanks! I was told cutting the spinal cord will not guarantee a decrease in spasms and pain but a horrible increase in bowel and bladder problems Hello! Do they have a procedure to stretch your tendons and muscles so I can straighten my legs out. I have extreme spasms that draw my legs up and have been that way for a long time. Does the procedure have a good success rate and what are the side effects, if any? Ty mylife@jeffreyramsey.net
I WAS SHOT STORY BELOW. If your on your Mobile Phone and cant see My embedded videos below, search bamajeff61 on youtube. Thanks, J.R.


Following a spinal cord injury, the nerve cells below the level of injury become disconnected from the brain at the level of injury. This is due to scar tissue which forms in the structure of the damaged area of the spinal cord, blocking messages from below the level of injury reaching
the brain. Spasticity does not occur immediately following a spinal cord injury.

When an injury occurs to the spinal cord, the body goes into spinal shock, and this may last several weeks. During this time changes take place to the nerve cells which control muscle activity.
Once spinal shock wears off, the natural reflex which is present in everyone reappears. Spasticity is an exaggeration of the normal reflexes that occur when the body is stimulated in certain ways. In an abled bodied person, a stimulus to the skin is sensed, and a sensory signal is sent to the reflex arch where it travels to the brain via the spinal cord, the brain then assesses the stimulant, and if the stimulant is thought not to be dangerous, an inhibitory signal is set down the spinal cord, and cancels the reflex from moving the muscle.
In a person with a spinal cord injury this inhibitory signal is blocked by the structural damage in the cord, and the natural reflex is allowed to continue resulting in a contraction of the muscle.

If you recently obtained a spinal cord injury and have pain and extreme spasms dont let doctors tell you you’re not in pain, when you are. Dont leave and end up finding your own medicine and hurt your future with other doctors. Most will deny you service after that.

Individuals who are injured by gunshot have more pain than persons with SCI caused by other factors.
My lower body from the waist down is rigid, the pain is crippling and I spasm to the touch. It feels like someone is twisting my legs and feet trying to pull me apart wile im on fire. The longer I sit up 20-30 minutes the more pressure (Burning feeling) I feel in my legs and feet, not to mention the pain inside my butt at times. Ever heard of digital stimulation? Well sometimes it don’t work and this backs up. The pain in my legs, feet and spasms increase. You can get headache and worst .We usually don’t talk about this but its part of being paralyzed, Do it or suffer the consequences. It involves a latex glove.

Baclofen/Morphine pump tubing catheter faults
The 3-4 Pain Doctors I went to for help for my Pump Neglected to listen/act when I said I was getting extremely to much and not nearly enough medicine at random times but this was never corrected so I had to let the pump run out of medicine to avoid overdose. This was neglect


The spinal cord is a long, thin, tubular bundle of nerve tissue that brings all nerve signals back to the brain so when this is damaged it interrupts the signals When the nerve tissue is damaged bad enough the signal cannot pass and therefore cannot communicate with the brain.

Research has shown that your level of injury and how you were injured can have an impact on whether you have pain. Individuals with low levels of injury tend to have more pain than those with higher levels of injury. Individuals who are injured by gunshot have more pain than persons with SCI caused by other factors.

Pain is an unpleasant sensory and emotional experience associated with actual or potential tissue damage. In general, people can experience acute and chronic pain. Most people experience acute pain when they have a disease or injury to the body. It usually begins suddenly and acts as a danger signal telling you that something is wrong and that you need help. This acute pain can be severe or mild, but it usually goes away as the body heals. Chronic pain is like acute pain in that it can start suddenly. However, chronic pain differs because it can build up over time and continue long after the body heals.

Hello! Not all quadriplegics and paraplegics can play wheelchair basketball! Some of us have extreme pain, spasms and easily obtain wounds that enable us from being as active and productive. Please don’t expect us all to breeze through life. I wish I could sit up long enough to write what I been through, better yet go to work. You wouldn’t believe the suffering I have gone though. I understand to a degree what Jesus had to go through, He started off living a good life and treated people nice and what did he get? I know why im not giving up it’s because of Gods plan, my kids, family and all the brothers and sisters out there that will learn from what I been through. The good and bad. Some of us don’t always forgive, trust and practice what we preach, including me in the past. My business was doing great. I can’t get away from all the problems this injury, that wasn’t my fault, has done to me. I want to be able to work again and put money back in the system.

There are nearly 1 in 50 people living with paralysis -- approximately 6 million people. That's the same number of people as the combined populations of Los Angeles, Philadelphia, and Washington, D.C. And that number is nearly 33% higher than previous estimates showed.
It means that we all know someone -- a brother, sister, friend, neighbor, or colleague -- living with paralysis. These aren't strangers. They are only one degree of separation from all of us. But their lives are different. They live with a condition that affects their family life, their ability to work, and their capacity to enjoy even the most routine everyday activities that others take for granted. The Christopher & Dana Reeve Foundation wants to change.

Dear Jeffrey,

I want to thank you personally for everything you have done to help bring about an amazing breakthrough for everyone in the paralysis community.

Reeve Foundation supported scientists at UCLA and the University of Zurich have been able to make rats with completely transected spinal cords recover to the point that they can step and fully support their own weight. This is a first!

Rats in the study had completely severed spinal cords. They underwent a three-part intervention. Scientists gave the rats a combination of the drug quipazine, and then epidural electrical stimulation. This treatment activates the spinal cord's neural circuitry and makes it functional again. Then the rats were given locomotor training.

The combination proved extremely effective. Within a relatively short period of time, the rats were walking again. The voluntary stepping of the rats on a treadmill was almost indistinguishable from their stepping prior to their spinal cord injury. http://communities.kintera.org/REEVE/blogs/daily_dose/archive/2009/09/21/65815.aspx

Medtronic Baclofen Pump. My first Medtronic Baclofen Pump Doctor and a mild pain medicine prescribed. Then he said he wasn’t profiting enough, I was forced to transfer to another Medtronic Pump doctor that wouldn’t prescribe any pain medicine. The complications from Spinal Cord injury and neglect from some doctors led me to find my own medicine (drugs) in the past, this cost so much $$ to stop the pain and allow me to work. I should have stayed home in their eyes and agree while curdled up like a baby n suffer from pain and loose my business, all they had to do was prescribe a mild pain prescription at that time the Medtronic pump was working okay. I tried to keep my business going with my special van and standup wheelchair I financed. The baclofen pump stopped working correctly and my spasms and pain got really bad. About two days a month my Medtronic pump would give me a massive dose of medicine and knock me out about 24 hours, I would wake up throwing up and extremely limber and relaxed for hours, I was scared. One two many times this happen, my Mom couldn’t wake me up so she called the doctor the doctor told my mom not to take me the Hospital but when I wouldn’t respond after so many hours she got scared and called an ambulance or I may have died the nurse replied, from that much medicine. We don’t know if it was the pump, catheter or the position of it. I just know I was getting to much medicine at one time. The medicine is supposed to bathe the spinal cord a steady dose 24 hours a day and safely.I explained this to every pump doctor I tried to service it and I got no big deal. WHAT? yes thats right. I was forced to sleep the wrong way and this started the wounds and they got worst, the doctors didn’t care I was trying to make a living and really hurting and the medtronic pump wasn’t working right like it did when I first had it implanted in my body Maybe the pump and catheter could have been adjusted to work like it did in the past. They didn’t try to correct this; The new doctors wouldn’t prescribe pain medicine knowing the pump wasn’t doing the job. God im only taking medicine that’s prescribed but the damage to my body can’t be reversed, corrected or improved so far. The mistakes the doctors made and I made because they didn’t want to correct this has me so mad at them and myself. I blame it on them, they blame it on me. I have pictures and documents that prove I tried to get them to help me with this pump problem when it first stopped doing its job. Im in pain and need to stop then publish this. I hope this makes sense to other spinal cord injury patients, God bless you if you have to suffer like I did and still do, but with a little less pain with the medicine my professional Friendly Dr prescribes, its 50% better than the past pain doctors offered me. I told the truth about my past when something went wrong with the pump the doctors made excuses; it was a drug problem not a pump problem and they bailed on me, all of them except my doctor now. He knows about the pain doctors that bailed on me at the time I needed the the most. Im still searching for a baclofen pump doctor that knows these pumps inside and out, but I prefer a different way to control my extreme spasms and pain. Ty. Jeff





This unknown lady wrote "the praying thing wasn't really doing much for people with spinal cord injuries or Alzheimers". I still pray God please prove her wrong Home Page: www.jeffreylramsey.com

32 comments:

Anonymous said...

Does anyone care or help unless you’re rich? If I had a lot of money I could pay someone to help me clean, repair, and exercise, fix my meals and the list goes on. I haven’t figured out a way to earn money while lying here. I can’t tell you if I going to be dependable from one day to the next because you don’t know from one day to another when the pain and spasms are going to hit you hard. I promise you this, I can’t work through the pain and spasms I have some days. I have hit my limit, bye. Jeffrey Ramsey

Katrina Pedder said...

OMG I understand completely...and btw sorry for your pain...but I agree, Why is it when we the patient tells the doctor what we think may help our ailments or what are ailment might be...we are completely dismissed...it seems to me if the doctor didn't think of it then it can't be right...cause we the patient can't possibly know the answer...even though we know are bodies better than anyone we just simply cannot have the answer...at least this is the feeling I always get.

Anonymous said...

OH AMEN!!! I went for yrs being told "It's ALL IN YER HEAD"; not true!!! I was standing on the side of the rd, w8ing 2 cross the street, my mother was coming home from after having breast cancer surgery, I had boughten her a gift. I woke up in the ambulance, "My Daddy's gunna kill me!!!" IDK what happened. I was only 8. It wasn't til l8r on I was told I flew 75ft in the air, crashed dwn on the car, flopped around, and then slid dwn the street on my face. Back then, there was only X-rays. It showed o broken bones, thank God, rite; well, my parents NEVER took me back for follow ups, NOTHING, the man got sued, parents spent MY $$$, I'm the 1 who is left struggling daily, had 2 reloc8 2 a drier clim8, so my family & friends r 19000 miles away. I cry daily, b-cuz the ONLY person who REALLY KNOWS MY PAIN IS Dr. A. Ahuja. God BLESS THIS WONDERFUL DR!!! He's in Wi. & is 1 of the BEST NEUROLOGIST in the COUNTRY!!! He's done WONDERS for me, he could wrk for you.

Anonymous said...

I wish I had a good response for you but aside for asking for help, which you are obviously doing online, I hope you are spending a great deal of time praying to your higher power. I would also learn to meditate, to go into the space where your mind and body are free. I can wholeheatedly recommend Holosync in addition to whatever other kind of meditation you're doing. One particularly powerful meditation you might try (and you won't see effects overnight, so take a long-term commitment to this one) is meditating of yourself receiving compassion and love and light from the universe and your body -- especially the parts of your body that are in pain -- emanating out rays of compassion, love and light back into the world, everywhere in the world. You will then become a "broadcaster/amplifier" for compassion, love and light in the world, and whatever you are pouring out into the world will have a multifold effect back to yourself. The hard part here is that you must be doing this not just for yourself but for the blessing of the world around you. Being in pain, this may be difficult because you may feel life is unfair and you're the one who needs attention but I urge you to go beyond those kinds of thoughts and allow yourself to be a vehicle for love and healing and compassion in the world. Do this and you will transcend and/or eliminate the pain.

May God bless and heal you.

Anonymous said...

Jeff, I am so sorry you are in so much pain. And I am so sorry that I don't know of a treatment or doctor that could help u, but it does sound like the post on june 12th might help? i do know your pain is very, very real and I will pray for you daily. I just know there is a doctor out there somewhere that can help you. maybe if you call

DR. ARVIND AHUJA
MIDWEST NEUROSURGICAL ASSOCIATES
2901 W. KINNICKINNIC RIVER PARKWAY
SUITE 201
MILWAUKEE, WI 53215
18009914323 OR
441 649 3232
FAX: 441 649 3799
24 HOUR ANSWERING SERVICE:
441 649 3703

I'm so sorry i can't offer more help. I do know what your leg spasms are like and I pray that a doctor can help you allieviate some of the pain.

You are in my prayers, Brother.

Rana

HaumanaDao said...

Jeff, your name came to me via Twitter user @LiteChild. I've read your bio and have great compassion for what you are going through. The Journey of a Soul for some can at times be both cruel and viscious. There are some serious Spiritual things going on with you which no doctor can heal as they only really deal with the physical. For example, do you realize that Forgiveness and Gratitude are the two main tenets of Healing? None of which I see anywhere in your blog? It's expected due to what you've gone through so the question is when will it start? You may not know and that is fine, so the first thing is to then "Seek and Ye Shall Find", "Ask and it is given." I am not a Christian but instead acquire wisdom from a varieties of sources. If you do not seek, you will not find. I am following you on Twitter.

Namaste

@HaumanaDao From Jeff the arthur of this story said...

Hello HaumanaDao! are you sure you read the Hello HaumanaDao! Are you sure you read the whole story? I can’t be productive because the spasms and pain are ruining my life. It’s a physical issue that causes a mental issue. Fix the physical issue and the mental issue will improve. If I could get around without the pain I could earn my way, by not being able to buy, sell or trade and compute at my best level, well you have to be responsible prompt and reliable and always keep your word. I can’t do that in my condition, is a dead end street. No ifs about it. Jeff

Mike said...

Hey, my name is MIchael. I had a SCI bout a year ago. Spasms suck bad bro. I know about the pain. I go nights when i dont sleep. I hope you will get better. I dont understand why God lets us go through so much pain, but God doesn't put more infront of us than we can handle. I dont know you but i hope you do come out of all of your suffering soon. Dont give up on prayer.

Anonymous said...

Hi Jeff,

It breaks my heart to hear your story.

When you get a chance when you feel up to it check out Joni and Friends web site

http://www.joniandfriends.org/

Read about Joni's story. She has been a paraplegic for about 30 years now from a diving accident.

I am praying for your healing!

Anonymous said...

Joni's Biography: Joni Eareckson Tada, Founder and Chief Executive Officer

A diving accident in 1967 left Mrs. Tada a quadriplegic in a wheelchair, unable to use her hands. During two years of rehabilitation, she spent long months learning how to paint with a brush between her teeth. Her high detail fine art paintings and prints are sought after and collected.

Due to her best-selling books, beginning with her autobiography, Joni, as well as having visited 35 countries, Joni's first name is recognized around the world. World Wide Pictures' full-length feature film, JONI, in which Mrs. Tada recreated her own life, has been translated into 15 languages and shown in scores of countries around the world.

Mrs. Tada's role as a disability advocate led to a presidential appointment to the National Council on Disability for three and a half years, during which time the Americans with Disabilities Act became law.

Anonymous said...

RESOURCES - SPINAL CORD INJURIES

http://www.joniandfriends.org/resource_list_category.php?category_id=36

Anonymous said...

Thanks for all the info and that story. I could do something productive if i wasnt in so much pain, Like now I wannn scream. God please please stop my pain? im gonna cry, Jeffreylramsey

bamajeff61 said...

Bryan Flemming: Our last night in Brisbane
By Flemming Family
Of all the issues that come with a spinal cord injury the skin would have
to be the biggest issue as if you don't keep checking for pressure areas
you could end up in bed for 1 to 8 weeks or even more depending on when it
was noticed,Bryan is getting more spasms in his legs and stomach, but
don't know if they are a good thing as if they get too bad it means more
medication to control them. It could be a sign that good things are
happening inside, Its usually not a good sign to have more spasms, There telling you something is wrong. Jeff.. but no one can tell
http://bryanflyanflemming.blogspot.com/2009/12/our-last-night-in-brisbane.html

bamajeff61 said...

Brain injury treatment with amino acids offers hope Spinal Cord
Dec 10, 2009 Spinal Cord Injury Treatment ... Through a treatment of
feeding amino acids to brain-injured mice, scientists found that the
rodents were ...
<http://www.brainandspinalcord.org/blog/2009/12/10/brain-injury-treatment-with-amino-acids-offers-hope/

bamajeff61 said...

Spinal Cord - Abstract of article: Levetiracetam in spinal cord
Levetiracetam in spinal cord injury pain: a randomized controlled trial
and one patient was still in levetiracetam treatment at the 6-month
follow-up.
<http://www.nature.com/sc/journal/v47/n12/abs/sc200955a.html

bamajeff61 said...

More Hope for Spinal Injuries - NYTimes.com
THE longstanding assumption that severe spinal cord injuries cause
permanent,to reverse part or all of the crippling caused by accidents
that crush or sever the spinal cord. Meanwhile, at spinal treatment
centers around the country, pressure sores, spasms, bladder function,
sexuality and reproduction.
<http://www.nytimes.com/1994/07/06/us/more-hope-for-spinal-injuries.html?pagewanted=1

bamajeff61 said...

The same blue food dye found in M&Ms and Gatorade could be used to reduce
damage caused by spine injuries, offering a better chance of recovery,
according to new research." Wouldn't you know K. would give me this: ....
Delay in treatment may result in irreversible spinal cord injury.What
research is being done?Investigators have found that as the heart beats,
syrinx fluid is forced downward. This finding suggests a role for the
cardiovascular system in syringomyelia.
<http://kscountrycorner.blogspot.com/2009/12/best-christmas-gift-i-could-have.html

bamajeff61 said...

Triune Blog: Feeling Chilly? Think Hot Stone Massage
By Triune
Conditions indicated for Hot Stone treatment * Muscular tension and spasm *
Decreased range of motion * Contracture * Arthritis or other acute
inflammations * Wound healing * Frostbite (with Dr.'s permission) Joint
stiffness Peripheral neuropathies or spinal cord injuries Pregnancy
(room temperature stones or warmer are only used over extremities)
Chronic fatigue. Clientele Testimonies …a sensation of warmth glides over
and through my body slowly melting away
<http://triune325.blogspot.com/2009/12/feeling-chilly-think-hot-stone-massage.html

bamajeff61 said...

Multiple Sclerosis Resource Centre Tolperisone (AV650)
"We had hoped AV650 would become an important new treatment option for
people in Avigen's AV650 Phase II trial in spasticity following spinal
cord injury is Tolperisone is a drug for use in the treatment of
neuro-muscular spasms.with debilitating spasm and spasticity caused
by neurological disorders.
<http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=2353&CFID=2778072&CFTOKEN=67324204

bamajeff61 said...

Spasms And Spasticity? - Quadriplegic & Paraplegic Spinal Cord
Quadriplegic and Paraplegic Spinal Cord Injury Homepage, spinal cord
injuries Reply to this topic · Start new topic Spinal Cord Injury
Research, Cure & Treatment News, Cafe Apparelyzed, UK Spinal Cord
Injury Unit Reunion ...
<http://www.apparelyzed.com/forums/index.php?s=f664df75bc5ead59d4ab3c064c1fcdbc&showtopic=13702

bamajeff61 said...

Stomach spasms - CareCure Forums
Stomach spasms Care. ... Care Health and wellness for those with spinal
cord injury and related disabilities .... topic only can't remember who
posted it stones often are a cause for increased new spasms, The one
time that I had unexplained abdominal spasms, I soon learned they were
caused by a kidney stone.
<http://sci.rutgers.edu/forum/showthread.php?p=1136870

bamajeff61 said...

Can anybody please explain my MRI report in English, give details
By admin
My MRI of Cervical Spine reveals; "1. Degenerative disc disease seen at
C4-C5,C5-C6,C6-C7 with mild streaking of servical spine possibly due to
spasm. 2. In case of surgery, the chance of recurrence of pain is
nearly 15 % as against less than 3% in ozone treatment. People suffering
from spinal injuries such as low back pain and disc disorder now have a
reason to smile, as injections of ozone gas could bring better results than
conventional surgery.
<http://shoulderbladepains.net/can-anybody-please-explain-my-mri-report-in-english-give-details-of-treatment-and-recovery-from-my-pain-2.htm

bamajeff61 said...

Mario Batali : Region Sicilia
To read about muscle spasms caused by baclofen. In the spinal test dose is
80 mg . Can you feel good now. ... Food-o-Meter NEW. Where not to buy
organic? At each , dose. The Cmax was last modified, The treatment. It
was found. In one controlled study. ... Spinal cord injury disease.
Improvement on the FDA.
<http://www.mariobatali.com/exploreItalyDtl.cfm?rid=617

bamajeff61 said...

What are the treatment options for pressure ulcers? The Spinal
By The Spinal cord Injury Zone
(10.00 out of 10); Progress after Adult Stem Cell Therapy Offers New Hope
to Iowa Spinal Cord Injury Patient 2 votes, average: 10.00 out of 10 (10.00
out of 10); A Father's Quest to Cure His Daughter Relief from muscle
spasms – skeletal muscle relaxants that block nerve reflexes in the spine
or in the muscle cells may alleviate spasticity. Surgery Some bedsores may
become so severe that surgical intervention is necessary, regardless of
treatment received.
<http://www.thescizone.com/answers/9766/what-are-the-treatment-options-for-pressure-ulcers

bamajeff61 said...

President invited to White House
Santa Maria Times
Will Ambler, president of a local nonprofit organization devoted to spinal
cord injury research, has been invited to speak with President Obama's
disability
<http://www.santamariatimes.com/news/local/article_b42c8a2a-ee00-11de-85e0-001cc4c002e0.html

bamajeff61 said...

Christmas Wish One Step Closer To Realization
WBAY
"She has had a spinal cord injury, so she is paralyzed from the waist down.
She does have slight movement in her feet when she tries really hard.
<http://www.wbay.com/Global/story.asp?S=11707868

bamajeff61 said...

Not all Spinal cord injuries are the same. I'm laying here wishing i could sit up long enough to accomplish something, be more productive God help me? why wont a doctor contact me? if you can make my quality of life better than it is now I will spread your name all over the net and you will have to turn down patients. I will help make you that more respected and popular. this is my site, but if you read this somewhere else my site add is http://www.jeffreylramsey.com ty..not all spinal cord injuries are the same, some of us cant play wheelchair basketball etc.. Paralysis doesn't stop ex-football players from giving back
Chicago Tribune
It was while he was returning a kickoff for Simeon High as a
lightning-quick junior in 1988 that he suffered a catastrophic spinal cord
injury and lost all ...
<http://www.chicagotribune.com/news/local/chicago/chi-gridiron-help-zones-18-dec18,0,514203.story

bamajeff61 said...

Posttraumatic Syringomyelia Spinal Cord Medicine NCBI Bookshelf
A posttraumatic syrinx originates at the site of spinal cord injury (SCI)
and Less-common findings are increased or decreased spasms,
hyperhidrosis,
<http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=spinalcord&part=A4082

bamajeff61 said...

Hello! Do they have a procedure to stretch your tendons and muscles so I can straighten my legs out. I have extreme spasms that draw my legs up and have been that way for a long time. Does the procedure have a good success rate and what are the side effects, if any? Ty mylife@jeffreyramsey.net

Anonymous said...

hello testing the email

bamajeff61 said...

I just woke up in a lot of pain. Ty for your comments. Would you follow me: It helps me cope. Ty http://www.twitter.com/jeffreylramsey

Jeffrey Ramsey said...

I'm sorry I haven't replied in a long time, I been fighting these horrible complications with all my senses and didn't have time to catch up and reply to everyone. Its the hardest I've had to fight, after being shot.